After a cancer diagnosis or a serious accident, patients often receive little personalized information or stories. When numbers are shared, they tend to be general statistics. However, patients need personal information that reflects their unique circumstances. Such information could give patients a clearer picture of life after cancer or an accident. Additionally, personalized stories could offer emotional support. This is demonstrated by Saar Hommes, who will defend her PhD on December 13.
Hospitals have been collecting data for years on people with cancer or injuries, showing, for example, the impact of cancer on social life or how quickly one can return to sports after a bone fracture. This data is primarily used to improve care.
It was unclear whether patients themselves would want access to this data, but Hommes’ dissertation shows there is significant demand for personalized numbers and stories. These take into account individual patient characteristics, such as age, fitness level, or type of illness. They help patients regain a sense of control over their lives.
Better understanding of the numbers
Not everyone can easily understand personal statistics, which is why personal stories are also important. Patient stories that resonate with the reader’s own experiences provide emotional support. This is crucial because a serious accident or cancer diagnosis often leads to stress. Knowing they are not alone can help patients feel better.
Personalized numbers, on the other hand, encourage patients to take action, such as seeking professional care in time or discussing the impact of their illness or accident with a loved one. Both forms of communication are important and can improve healthcare.
